Category: Uncategorized

  • How can we get to a single shareable patient record?

    If I were a new Secretary of State arriving at the Department of Health and Social Care (DHSC), one question I’d be asking is why is it so difficult to have a single patient record. That is to say: a single source of health information about a person that is available to any health practitioner helping them.

    The reasons for this are legion but fundamentally it’s down to two things. Complexity and culture.

    The NHS, despite the name, is not one single service. It’s a huge collection of different organisations funded in different ways under different conditions, delivering possibly millions of different services. This is underpinned by a huge mix of software systems both national and local, making the NHS the brownest of brownfield environments for digital change. 

    As well as institutional complexity, there is also data complexity. Picture a cradle-to-grave data model that minutely describes the human body and its systems, the things that can go wrong, and the treatments available. Add in the fact this data is also highly personal. The technical security and political sensitivity questions are formidable.

    Beyond the environmental factors, there are some self-inflicted moves that have slowed progress too. Lurches in NHS technology policy from the top down / outsourced model of NPfIT to thousands of blooming flowers (although flowers is perhaps a generous metaphor in many cases). 

    From interoperability to convergence and back. Completely different commercial approaches in primary, secondary, or urgent care. And more digital and data strategies than you can shake a stick at. This confused and confusing picture is exacerbated by piecemeal funding cycles driven by announceables that don’t allow for long term planning or foundational enabling work.

    IMG_1834_2024-01-16-091936_zhos.webp

    But it can be done. It arguably has been, if you look at the success of shared care records like Connecting Care or One London. In the long term many, including me, believe that the best way to deliver this requires a new model where comprehensive health records are organised around patients rather than institutions, based on open data standards. Such models are emerging in some regions and countries, such as Slovenia.

    I would ideally like to tell the new Secretary of State to simply swerve the question as elegantly as possible. A single health record is hugely complex, fraught and littered with elephant traps. But on the basis that isn’t politically feasible, here’s what I would say is needed:

    • Clear consistent long term strategy accompanied by a credible delivery plan
    • Sustainable and predictable funding supporting the development of long standing expert teams
    • Bold local and national leadership
    • Starting small and iterating, and scaling what’s effective
    • More active management of the vendor market in secondary care
    • Increased investment in the “plumbing” activities supporting development and adoption of data and interoperability standards

    Because no matter how hard it is, there are reasons for optimism. Like many things in the NHS, the future is perhaps here; it’s just unevenly distributed. And because the prize is so big, it really is worth the effort.

    This post was originally published on the Public Digital website.

  • Public Digital health and care highlights 2023

    A few weeks ago in a planning workshop, our CEO Ben encouraged me to post more; thus gifting me a nice and straightforward NYE resolution. It’s not an unfair challenge. Little does he know last January I set myself the personal target of publishing 3 blog posts in the entire year to jolt myself back into a habit. I think I’ve managed one so far. So this is an attempt at being a whole third less useless.

    Leading the health and care team at Public Digital for the last 12 months has been another of immense intellectual fulfilment, enjoyment, and pride. Tough problems with great clients. So, here’s a quick note on some of the year’s highlights to end 2023 in the way I want to start 2024.

    (1) On the basis you get nowhere in the transformation of health and care without really understanding clinical practice, this year we were delighted to add a doctor to our core team. Not just any doctor though — one that also has a Masters in Design. Welcome Saw. We’ve also done important work to strengthen the technical expertise of our network in areas like population health or provider trust technology.

    (2) From a previously predominantly NHS-oriented client landscape we had more client diversity in healthcare this year. And in particular have made strides in the charity space, and social care. Our team is highly purpose driven, so hearing a client report for instance that thanks to our help we “genuinely improved outcomes for children” as part of a safeguarding project we were working on will live long in the memory.

    (3) Public Digital is part of a family of companies called kyu. Travelling to meet our health counterparts from the kyu various companies in New York last March was a thrill, and gave me a much better sense of the capabilities we have across the group. I already knew about the brilliant people in IDEO, but the group also has skills in urban designpublic affairsbehavioural insightsdevelopmentbranding and creative, and more.

    A photo of Chris Fleming and Matt Harrington at the offices of New York Governor Kathy Hochul.
    Chris and Matt at the Governor’s Office, New York City

    (4) Although we still do a lot remotely, getting out on the road in the UK has been invaluable to form ever better and more trusting relationships. This year we got to: Barnsley, Blackpool, Bristol, Chelmo, Dartford, Derby, Ipswich, Liverpool, Maidstone, Manchester, Middlesbrough, Newcastle, Northampton, Norwich, Nottingham, Southampton, Warrington, Worthing. And of course lots and lots of lovely old London.

    Chris, Jess, Audrée, and Saw pictured on Grey Street in Newcastle with Grey’s monument in the background.
    Chris, Jesse, Audrée, and Saw on the road in Newcastle.

    (5) This was also a year when we started to think about the intersections between some of our practices within Public Digital. To that end, I’ve been working with my counterpart Emily and her amazing team on healthcare opportunities in the Global South. This included in the latter part of the year, supporting Madagascar to examine opportunities around open source healthcare technologies. Our team was also represented at the Global Digital Health Forum in Washington DC at the start of December.

    Selfie of Connie van Zanten and Absisola Fatokun on an escalator on the Washington DC metro.
    Connie and Abisola in DC for the Global Health Summit

    (6) It wouldn’t be the health and care team without plenty of work in the NHS as well of course, and that has ranged from deep dive assessments into trust digital maturity, to work at the national level on products & services, and getting right back to our roots with a bit of website work thrown in too. We’ve also continued our amazing partnership with NHS England, NHS Providers and NHS Confederation on the Digital Boards program. And we dropped into a handful of the major events of the year. Particular highlights including Cate appearing on a panel with Patricia Hewitt to talk about ICS digitisation, as well as Mike keynoting the NHS Providers conference.

    Cate McLaurin speaking at a podium at the Digital Health Rewired event. Behind her is a slide saying “If you’ve seen one ICS, you’ve seen one ICS.” This quote is originally attributed to Prof. Chris Ham.
    Cate McLaurin presenting alongside Patricia Hewitt at Digital Health Rewired.
    Mike Bracken founding partner of Public Digital talking at a lecturn at the NHS Providers conference. On the screen in the background is a slide that says “Our future health outcomes are dependent on open, interoperable systems, and innovative, user-driven data practices. Agree?”
    Mike Bracken speaking at the NHS Providers conference.

    (7) Our client feedback has been phenomenal this year. Lots of it has been variation on the theme that we “show up differently”, and get great results because of it. I like to think of this as internet-era consultancy — borne out of the unique space we occupy between classic consultancy and digital delivery. Amongst it all, my absolute favourite was hearing that “Public Digital have made us into a team”. This outcome is something that surprisingly hard to capture as a deliverable in a statement of work, but is beyond doubt the most value we could ever leave a client.

    A yellow post-it note with the handritten note “Public Digital have made us into a team.”

    So there you are. Plenty of highlights, but that’s not to say it’s been universally positive or easy going. The contortions at the centre of the NHS and its ripple effects have made things bumpy at times. But through those experiences, comes wisdom, and resilience. Onwards.

    We are PD Health and Care. We generate momentum for radical change by:

    • assessing and building digital maturity
    • designing digital strategies
    • resetting difficult programmes
    • building exemplar services
    • coaching leaders
    • developing teams
    • changing cultures
    • transforming operating models

    If you think we can help you with any of the following give me a shout chris@public.digital.

    Merry Christmas everyone. 🎄

    This post was originally published on Medium on 19 December 2023.

  • A to-do list for the next NHS Director of Transformation

    The news broke last week that Tim Ferris, Director of Transformation at NHSE is leaving. I was quite surprised about how relatively quiet the Twitterverse seemed about it, but change fatigue is a forgivable response. The news reminded me of Joe McDonald’s excellent lava lamp analogy to describe the NHS’ constant pattern of reorganisation.

    The plans and timeline for appointing Tim’s replacement haven’t been made public yet. Assuming there will be a like-for-like role to step into, the new appointee will have a full in-tray.

    Here are six suggestions for what I’d put on the top of their to-do list.

    1. Exemplify the NHS England ambition to adopt a collaborative, servant-leadership posture, and establish what the system will solve at the centre, what it will not, and why. Contrary to what you might hear from some quarters, the NHS doesn’t need fewer managers. It needs a different leadership approach, one that strengthens the feedback loop between the system and national teams.
    2. Publish and keep updated a single roadmap for national products and services that describe the relevant team’s future approach, the rationale for any major product decisions (e.g. why particular features have been prioritised above others), and how they relate to each other. That roadmap needs to give systems and suppliers confidence in what’s coming, and what they can rely on.
    3. Stop the Federated Data Platform procurement until there’s a good answer to the questions posed in the very sensible UKFCI paper. Start working in the open so that people can be brought on the journey and be confident about what’s going to happen with their data.
    4. Step into shaping the software market for health. Make this an explicit mission of the transformation directorate, and take a 10-year view. Quietly ditch the EPR convergence mandate, make space for interoperability approaches, and remove the barriers to entry faced by challenger suppliers that are taking iterative, design-led, open standards based approaches.
    5. Do less, better. System digital leaders are bombarded with pots of cash, priority requests, exacerbated by end-of-financial year “spend it or lose it” moments. No cash for “innovation” until organisations have put an end to 10 minute login times. Work with wider NHSE and ministers to agree a smaller set of key priorities, and stop doing other things.
    6. Give the next administration a plan to allow the long term funding of teams, not projects. Prepare this so it’s in the in-tray of the new administration on Day One.

    What would you do?

    I’d love to hear your ideas.

    And for those in the trenches trying to get the work done – keep going.

    This post was originally published on the Public Digital website.

  • Improvement through digital transformation

    The more time I spend working with the NHS (seven years and counting) the clearer it becomes how closely the twin agendas of digital and improvement are linked. At Public Digital, we often refer to our definition of digital as using the “culture, process, operating models and technologies of the internet era” to improve outcomes for users. Squint a little and you could arguably define improvement the same way.

    At their core, both represent long term behavioural shifts in how people, processes and technology come together. To successfully effect change, both require organisations to hold a mirror up to their existing orthodoxies and practices, and make best use of the levers they have at their disposal.

    On 31 January I had the pleasure of joining a panel with Maxine Power (director of quality, innovation and improvement, North West Ambulance Service NHS Trust) and Matt Graham (director of strategy, Harrogate and District NHS Foundation Trust) as part of the NHS Providers Trust-wide Improvement programme. The conversation revealed a strong consensus that there are powerful levers trust leaders can use to deliver digitally enabled quality improvement. Here are some of the levers that were mentioned:


    Prioritisation

    You will not be able to do everything, everywhere, all at once. There will always be competing pressures. As leaders, being methodical enough to identify the most important problems to solve will yield the best results, and in doing so win you the most friends. Think about scale: where are the highest volume and highest value transactions that can be made better for the most people? It’s worth noting that the panel unanimously agreed you need to fix the basics – devices, network, Wi-Fi – before you do anything else.


    Evidence

    Ask for evidence and measurement to establish whether you are achieving outcomes. Naturally, given the pivotal role and philosophy of evidence based medicine, this approach is pretty ingrained in the NHS. But it’s important to extend this to your digital efforts. For instance, what does the data (from your website, help desk, or incident log) indicate is your top user need? “When can I go home?” is the question that patients in a care setting probably ask the most. So focus on this question (and others like it) as a starting point for your service design. Success is not won by simply buying and deploying: the solution actually has to be used and useful, with evidence to prove it.


    Teaming

    “Change is a multidisciplinary team sport”. Leaders can create the space for change by enabling different disciplines to come together to figure out answers. For me, the magic ingredients of a team like this are operational, clinical, digital, and design. This kind of interdisciplinary thinking is the key to driving effective change: in reality, innovation isn’t shiny technology. It is finding new and better ways of doing the basic stuff to solve users’ biggest challenges.


    Governance

    It’s striking how often governance is equated to “project and programme board meetings” in the NHS. Of course, the rhythm of meetings around a project is important, but endless project updates will not give you anything like the same understanding of its progress as going to see it for yourself, by visiting the team, and letting them show you what they’ve accomplished. Done well, governance should be empowering and enabling. It should invest teams with the ability to make decisions for themselves, but set the guardrails that ensure those decisions take account of a wider ecosystem of dependencies.


    Patterns

    As you deliver change on a particular service, department, or pathway, you will learn an enormous amount. This might be a smart approach to information sharing, a strong business case argument, the way you should ask a user a particular question, or a helpful dashboard layout. Capturing what you’re learning, and making tools, documentation, and content related to the problems you’ve solved available to the wider organisation teams will enable you to scale the change more quickly.

    NHS trust leaders are increasingly seeing how the sum of the parts of digital, quality, and transformation can be greater than the whole. Long-term culture change is hard. So using all the levers you have at your disposal will give you the best chance of success.

    You can find out more about the Digital Boards development programme and our support offer.

    This post originally appeared on the NHS Providers website.

  • What does “working in the open” mean?

    In Public Digital we often talk to clients about working in the open. We think it’s a key ingredient of successful digital transformation.

    What is working in the open?

    Working in the open means showing people the work you are doing, as you’re doing it. At a minimum this should be people within your team and people across your organisation. Even better is sharing publicly, with stakeholders outside your organisation who have an interest.

    Working in the open is not just about demonstrating progress, but also talking openly about mistakes, changes, and things you’ve learned. It’s partly to support communications, to help you build a movement for change. But it’s also about good governance. It gives stakeholders a window onto your work that drives up quality, helps unblock, and manages your dependencies. Work in the open by being open about the work.

    Typical examples of working in the open are as follows.

    Hosting ‘show-and-tell’ sessions. A show-and-tell is a regular (every 2 weeks, say) open invite event. The team does a short presentation about recent progress, and allows time for questions at the end. Importantly the team does not simply give a status update but “shows the thing”. Such as prototypes, designs, research, or other lightbulb moments.

    Publishing regular updates on the team’s progress. For instance by writing and publishing weeknotes. Or writing regular posts about more specific things as they learn them. This could be a set of insights from user research sessions. Or the logic behind making a particular choice about a technology.

    • NHS trust digital leaders Amy Freeman and Andy Callow both publish weeknotes.
    • NHS Digital hosts a series of blogs on transformation, technology, and design.
    • The Defra Future Farming programme blog.

    Publishing code and documentation as open source. When a digital team is developing a digital service or piece of software they should code in the open wherever possible. Publishing code in public repositories helps teams focus on the quality of their code and documentation. It allows others to build or copy the work that has been done.

    • GCHQ’s internal Boiling Frogs research paper on software development and organisational change. If GCHQ can work in the open, anyone can.
    • NHS design and prototyping kit code repository.
    • The Government Digital Services’s code repositories.

    Using workplace messaging tools. This is one of the simplest things you can do to help your teams work in the open more. Posting information in a ‘chatroom’ rather than sending an email switches the default visibility of a message from closed (only the people copied get it) to open (everyone in the channel or room gets it). This helps all the team know what’s going on, and allows the team to discuss important topics together. It also allows discussion to happen asynchronously without the need for a meeting.

    Richard Pope has published a brilliant thread on twitter of some of the things teams publish in the name of working in the open & transparency.

    Tweet
    Working in the open: chat rooms

    How does working in the open help

    What is the traditional way of communicating?

    Traditional methods of project communication typically follow these patterns:

    • Broadcast. The communications are one-way.
    • Hierarchical. Only the most senior people are allowed to represent the project.
    • Tightly controlled. Everything has to be cleared by a separate comms team.
    • PR-oriented. The objective is to spin what you’re doing to show it in the best possible light.
    • Big bang. One big press release when the work is ‘finished’.

    These types of communications are often impersonal, inauthentic, and frankly boring.

    Advantages of working in the open

    Working in the open is typically low cost and has a number of advantages

    It supports better project communications because:

    • It builds momentum. Digital transformation is not only about technology. It’s also about changing culture, process and operating models. You won’t be able to do this in a silo. By working in the open, you can develop your narrative and bring people with you. It helps create momentum for change. Sharing what you’re doing little and often increases the chances people will engage, reaching wider audiences.
    • It’s 2-way. It allows your audience to interact and converse with you. It opens up a channel for you to receive feedback.
    • It is timely and relevant. Avoiding long comms clearance processes enables your communications to happen when the work does. This helps build momentum and keeps you on the radar of key stakeholders: decision makers or funders. Decision makers don’t like surprises.
    • It has more authenticity. Working in the open allows you to talk in the voice of the people who best understand the project. Helping people understand why you’ve made the decisions you have builds trust. Like your maths teacher used to say, show your working out.

    It supports better project governance because:

    • It makes the service better. More eyes and earlier eyes on the service, product or project means it will get improved, more quickly and at lower cost/risk.
    • It is a window onto your world. It allows stakeholders a much clearer understanding of what the hell is going on than a Red/Amber/Green status report in 8pt Arial on a slide.
    • It manages dependencies. Legacy organisations tend to try and manage dependencies in large spreadsheets. This may allow one person (the owner of the spreadsheet) to understand dependencies. But this isn’t enough. Working in the open allows everyone to see what’s in flight, and identify and manage dependencies for themselves.
    • It helps you manage and persist knowledge. It enables you to build an open store of understanding and insight over time about how and why things have been done. This makes it easier for others to copy or pick up where you left off. It allows others to link to what you are doing and explain.

    It supports capability building because:

    • It helps you hire. Digital professionals like to be able to work in the open. If your organisation can show that it works this way, you will attract more of the people you need. “I asked members of the audience to raise their hand if they wanted to work at GDS after reading one of its blog posts. 75 per cent of people put their hand up.”
    • It is democratic. Everyone on the team is empowered to showcase their expertise about what they’re doing and why. This builds confidence in communications skills. It helps everyone feel like they are contributing.

    If you want to build trust, confidence, and learning, we suggest you work in the open.

    Further guides

    More advice on agile communications from Giles Turnbull.

    More advice on weeknotes from Giles and Ben.

    More advice on running great show and tells.

    More advice on doing presentations.

    More advice on coding in the open.

    This post was originally published on the Public Digital website.

  • NHS digital reorganisation: start by working in the open

    The Department of Health and Social Care announced yesterday that NHS Digital and NHSX will be folded into NHS England. We have seen these kinds of reorganisations many times before, including in the NHS. All too often they are distracting, dispiriting and don’t deliver the intended benefits.

    But that doesn’t have to be the case – providing you get off on the right foot. The reorganisation is not the story. What you do afterwards is.

    We don’t know all the internal mechanics of the NHS. But based on what we do know, here are our suggestions for using this transition to build trust and continue the momentum gained during the pandemic.

    1. Work in the open by default. Start by publishing the names of who’s in charge, and what they’re responsible for.
    2. Make an unambiguous, technically literate statement explaining what this means for patient data.
    3. Deploy expert multidisciplinary teams (design, technology, clinical, operations) at all levels of decision making and delivery. Make the most of NHS Digital’s specialist capability in design and technology. 
    4. Explain which platforms are needed across the NHS, based on a thorough look at what exists now.
    5. Show how this organisation change is meaningful by delivering something quick, visible and helpful to the system as a truly joint team. Such as an MVP platform for ICS websites, or new clinical calculation APIs, by next April.
    6. Use the practice of working in the open to manage dependencies and duplication, instead of relying on spreadsheets held by Programme Management Offices. Get senior leaders to publish weeknotes.
    7. Fix corporate basics to reduce friction for staff: make the website clear, put everyone on the same email system and directory, modernise the most important internal tools.
    8. Do less so you can deliver more. Use the change to stop doing what is no longer needed or isn’t delivering value.

    Most important of all – don’t let this distract from the core mission of making the NHS better for everyone. We need it, especially this winter.

    This post was originally published on the Public Digital website.

  • What good looks like for digital transformation in health

    As part of our work with NHS Providers (supported by HEE and NHSX) on running digital board sessions for trusts, we often get asked, “Can you tell us what good looks like?”. So it was great to see that NHSX is working on this very question, and even better talking about it openly on social media.

    When Trust leaders ask us this question they usually are coming from a place of “tell us what the latest technology is” or “paint us a picture of the modern digital hospital”. My response is always the same. We could do that, but is that really what you need?

    Historically, digital advancement in health settings has been taken through a predominantly technological lens. The most obvious example of this is HIMMS. But I worry this approach has been pretty unhelpful overall, because as anyone with experience at the sharp end of digital transformation will tell you, it’s not just the technology but the culture, processes and operating model you need to worry about if you want to genuinely change. The risk of painting the picture of an internet-era clinic is that you are not giving a trust any tools to help them get there.

    With that in mind, here are some thoughts about what good looks like

    1. Having a clear mission everyone understands. Digital strategies that are 40pages of shopping lists are hard to remember. Make it clear to people what you are trying to do, or they wont come on the journey with you.
    2. Relentlessly focus on your users’ needs. If you aren’t actively focussed on understanding and addressing the clinical, practical, or emotional needs (Ht Janet) of either patients, clinicians, or other staff people won’t use your services and you will never see any benefit.
    3. Talk about services not projects. Services start at go live, projects end at go live. Your digital services should be seen in the same way as any other service you offer- to be supported ongoing, iterated, improved. The NHS Service Standardhas all the advice you need.
    4. Invest in skilled teams – with internet era capability covering not only engineering but product and design, and pair these with clinical and operational staff. Work together, don’t chuck requirements over the fence. And please please try not to design things without some design expertise!
    5. Use modern cloud based technology. Don’t lock into long contracts. Work with suppliers who want to collaborate with you as one team. Stop putting tin in the basement.
    6. Be agile. Focus on the minimum viable product based on valued delivered and iterate when you learn more. Minimum viable governance that is proportionate to the need. Show the thing, don’t hide meaning in 2″ inch-thick board packs.

    As a board, be servant leaders. Take collective responsibility for your digital transformation, put it at the top of your agenda. Ensure you have the right technical knowledge in the room where it happens. Unblock things for your teams. Move authority to information not information to authority.

    The title of this blog post is ‘What good looks like for digital transformation in health’ but the same principles apply in every sector. None of this is news. It’s all already in the Public Digital bookblog, and in other places like the digital maturity scale my colleagues developed with Harvard Kennedy School. Many of my formercolleaguesand others all around in the health and care system have been saying similar things. 

    A common picture for what good looks like is beginning to emerge across the NHS. In some places, it is already more than just words – you can see it, and so can patients. But that’s not true everywhere. What comes next must be the harder discussion about what makes good so difficult to achieve, and so hard to scale. Because the answers are likely to be rooted in the topics that all too often fall into the ‘too hard to fix’ category: money and power, legislation and legacy, the rules and tools of the game. 

    If you’re interested in this work and want to continue this conversation you can find me @e17chrisfleming.

    This post was originally published on the Public Digital website.

  • What do NHS England’s Integrated Care System plans mean for digital transformation?

    On 26 November NHSE/I published a paper on its plans for moving forward with Integrated Care Systems in England. Integrating Care: Next steps to building strong and effective integrated care systems across England.

    For the uninitiated, this is the policy response to a challenge teams are navigating up and down the country. Some responsibilities for health and care fall to the NHS, and some things are done by local councils. This can create a mess of misaligned incentives, duplication, and fragmentation.Enter the Integrated Care System (or ICS for short) to help straighten things out.

    “In an integrated care system, NHS organisations, in partnership with local councils and others, take collective responsibility for managing resources, delivering NHS care, and improving the health of the population they serve.”

    NHSE/I.

    NHSE’s proposal aims to formalise the model, putting the ICS reforms on a statutory footing and give them responsibility for planning and buying services. This is an oversimplification, but the move would seemingly repeal aspects of the Health & Social Care Act 2012. For further reading NHS Providers has released a helpful primer.

    What the paper says about digital

    There are quite a few references to digital in the NHSE/I 40-pager. I’ve extracted them to save you a job.

    Starting from the off, there’s a clear strategic intent to put digital & data at the heart of the change. It’s one of a handful of key themes.

    “…we will need to devolve more functions and resources from national and regional levels to local systems, to develop effective models for joined-up working at “place”, ensure we are taking advantage of the transformative potential of digital and data, and to embed a central role for providers collaborating across bigger footprints for better and more efficient outcomes. The aim is a progressively deepening relationship between the NHS and local authorities, including on health improvement and wellbeing.”

    In addition to this broad strategic intent there are more specific points on digital that are set out as follows:

    • ICS’s will have an SRO for digital on their boards.
    • ICS’s will need a digital transformation plan.
    • There is a responsibility to build digital and data literacy of the whole workforce “as well as specific digital skills such as user research and service design”. And can we just pause for a round of applause for whichever official managed to squeeze that latter clause in. 👏
    • Introduce shared contracts and platforms including shared EPRs.
    • Develop or join a shared care record joining data safely across all health.
    • Build the tools to allow collaborative working and frictionless movement of staff across organisational boundaries, including shared booking and referral management, task sharing, radiology reporting and pathology networks.
    • Follow nationally defined standards for digital and data to enable integration and interoperability.
    • Use digital to transform care pathways.
    • Develop shared cross-system intelligence and analytical functions.
    • Ensure transparency of information about interventions and the outcomes they produce.
    • Develop a roadmap for citizen-centred digital channels. NB Not sure why this would be different to the digital transformation plan referenced above, but nevermind.
    • Roll out remote monitoring to allow citizens to stay safe at home for longer.

    What does that mean for local digital capability?

    So far so lofty. But what does the team look like that has to be put in place to deliver all of this?

    The challenge of doing cross-institution service design in health and care has long been a bugbear of mine and many others. How can you possibly design great services across such a fragmented system? The NHS must be the largest manifestation of Conway’s Law on the planet. So on the face of it I think this reform is A Good Thing. But it will only solve the digital mess if there is also investment in capability at the ICS level to be able to deliver it. The types of people you need to deliver all of the above amounts to really rather a lot of specialist skills. And there are, assuming the website is up to date, 21 ICS’s currently.

    Individual trusts, councils, and others will also have their own digital and technology teams. Institutional fiefdoms will still need to be managed, so how to ensure all the relevant organisations have skin in the game and that the whole is greater than the sum of its parts? This will all also need to be executed in the context of national agencies delivering platforms, framework agreements, and inevitable ministerial pet projects.

    What should an ICS Digital Team look like?

    I guess a lot of this will need working out and no doubt people are on the case as we speak. But my starting points for an ICS digital transformation team would be the following:

    • Multidisciplinary: it would contain designers (service, interaction, content); transformation experts; product and delivery people, user research; interoperability gurus; data scientists; IG experts (the ones that enable not block); and experts in the management of commercial IT contracts. It would also definitely have some technical architects (not armchair architects, ones that can still write code) and developers.
    • Empowered, within some well understood and enforced guardrails delivery teams need to have clarity of purpose but freedom to act. There needs to be an agreed patch for sensible service design, and this feels most achievable at the ICS level. Teams should be autonomous to work within that. But there should also be some rules around what gets built or bought, based on the NHS design standard and use of common NHS platforms.
    • Networked: the teams across the country should all be talking to each other. One of the most brilliant but little-talked-about innovations of the central government digital transformation movement was the cross-government Slack instance. All digital professions in the civil service across the country could instantaneously reach tens of thousands of other experts. A question like “does anyone have experience of translating services into Welsh” would attract multiple offers of help within seconds. Building on the curated communities that already exist like Digital Health Networks need to be turbocharged.

    That’s my view at least. I am sure others will have alternatives and I’d really love to hear them.

    This post was originally published on Medium on 10 December 2020.

  • Building digital organisations, creating great teams and enabling transformation

    I’ve spent a good portion of my career working in digital teams in the NHS. You’ll have to trust me when I say it’s the most satisfying work you could do.

    The ingredients are pretty compelling. Done well, it brings you close to the people you are trying to help. You understand their backgrounds, stories, hopes and fears and live it with them. A minute saved, a question answered, a reassurance given; incremental tweaks making a small difference to the world. Over time these can scale up to something rather powerful. Even better if the team is empowered by leadership to solve the problems the business and users have set them. There is no further level to ascend in Maslow’s hierarchy.

    Most inspiring though, is operating in a multidisciplinary environment. The satisfaction of charting a course through what’s safe, what’s possible technically, what the business wants to achieve, and what experience will meet the user need. It requires technologists, designers, researchers, clinicians and operational staff. They each bring expertise from their alien worlds to alight on the thing that will make the service better by next Friday. And the Friday after that.

    As part of the Digital Board’s programme we recently helped NHS Providers produce a guide on Building and enabling digital teams. It may sound obvious when you say it out loud but the secret to digital transformation is not magic. It’s teams. While leadership and a window of opportunity are important, all the words and slides in the world won’t save you without a team in place to deliver. Teams are the start, middle and end of your transformation.

    The board of any organisation plays a huge role in creating great teams. It also sets the conditions to enable them to thrive. In the guide we propose 8 questions for boards to ask about progress building a digital organisation.

    1. Do you talk about digital services or IT projects?
      Projects imply a one-off thing to be ticked off a list. Services imply a need to understand the people who will use them and help them complete a task. Projects end on launch day. Services start on launch day.
    2. Who designs your services and how?
      Digital is not just a rebrand of your IT department. True transformation happens when the edges of traditional and new disciplines meet. You will design the best services and meet the needs of your users when you bring together multidisciplinary teams.
    3. Is specialist digital knowledge represented at the top table when key technology decisions are made? Digital is about rethinking operating models as much as delivering new technology. Making those decisions in the absence of specialist expertise is risky.
    4. Are you applying new hiring strategies to hire new skills? Senior product leaders or interaction designers are not typically going to be looking on NHS Jobs. If you look in the same places, you will get the same people.
    5. Does your team look like who you are trying to reach? The best way to build services that work for everyone is to make sure that your team, at any level, reflects the people who will be using them. Diverse teams are more productive and innovative, and have been shown to improve patient care and outcomes.
    6. Are digital teams coming to you with problems to solve? As a board, are you servant leaders having an open conversation, or are you trying to decipher the hidden problems obscured in the papers?
    7. Does information flow to authority, or does authority flow to information? There is no argument that good governance is critical to good service delivery. But ‘good governance’ is often confused with extra process, hierarchy and paperwork. There is a better way.
    8. When was your last blog post about your digital transformation published? One of the most powerful ways an institution can differentiate itself and attract a new type of skillset or leader is to interact with the outside world in a different way. The best digital organisations show their working out.

    This post was originally published on the NHS Providers website.

  • An introductory guide to digital healthcare products

    There is a wide and occasionally bewildering array of software used by patients and clinicians in the NHS. This is a short, introductory reference guide to illustrate the range. It is by no means comprehensive so any critique or additions are well received. I hope it’s useful to some.

    Clinical system: If you are new to healthcare, one of the immediate things you encounter is the primacy of the clinician and the concept of clinical safety. A clinician is someone with a medical qualification who treats people i.e. a doctor, nurse, paramedic, dentist, pharmacist, or midwife. ‘Clinical system’ is a broad term that is used to refer to the software that supports clinical activity i.e. the act of treating patients in a healthcare setting. When software is considered to be clinical it means it is subject to legislation such as clinical safety standards (as defined under the Health and Social Care Act 2012) or the Medical Device Regulations. This means clinical systems must be able to evidence their safety through testing and by explaining their approach to clinical risk management.

    Clinical systems are the bread and butter of healthcare and this is where most of the health IT money goes. They can range from specific standalone systems for a specific purpose like a Radiology Information System/Picture Archiving and Communication System, to care pathway-specific dealing with, say, cancer. A care provider chooses these based on its needs then often integrates them into a core enterprise system, more on which below. There could be over 100 in a given hospital.

    Patient administration system (PAS): used in hospitals, this describes the software that manages administration of patient interactions. This includes things like: the hospital’s patient index with patient demographic details, appointment booking functionality, checking patients in and out, scheduling and workflow type stuff, referral management, payments. Notably, PAS’s are distinct from being clinical i.e. they do not typically store or process clinical information about patients. Pretty much every care setting has something akin to a PAS, it’s just that the term is synonymous with hospitals. Because of the way PAS’s in acute settings have evolved to meet very specific NHS-y needs such as national data returns or payment processing, it makes it a niche market with higher barriers to entry.

    Electronic Patient Record (EPR): self-explanatory in some respects, as this refers to the digital manifestation of the patient’s healthcare record. EPRs are everywhere, although the term itself is most closely associated with hospitals. This is mainly because in hospitals there is a historic distinction between the care record and the PAS, and because other care settings have EPRs that are already called other things. These days EPR systems often do heavy lifting for both the patient record and various jobs previously undertaken by the PAS, as part of the trend to enterprise approach. EPRs can also go by the name EHR, or EMR. The market leaders in the UK are Cerner and EpicIt is apparently not cheap to install an EPR. Leeds Teaching Hospitals built their own, starting in 2003. Many sensible people on all sides of the political divide think that the patient data layer should be separated from the enterprise applications, and more who suggest it should be nationally owned. This is not going to be easy.

    GP IT Systems: these are the main software systems used by GPs, and are really an EPR for the GP setting. They have a whole range of features from appointment booking and management, prescription management, to generation of letters and storage of data. Crucially, they store your GP medical record, allowing GPs to code entries and enter free text information regarding your consultations, conditions or medications. The GP record is particularly important in NHS terms because the way the NHS is structured means it is de facto the main record for your healthcare. It stores correspondence between your GP and hospital or other provider. The systems also automatically pump data to NHS Digital for aggregate, statistical use. There are 4 GP system suppliers in England which are TPPEMISVision and Microtest.

    Clinical decision support system: commonly abbreviated to CDSS, this is a tool that is often embedded as a feature within types of clinical systems. It typically forms a series of questions that can be asked of a patient in order to help a healthcare professional (either clinically trained or not) assess the patient’s condition. You can see a CDSS in action on 111.nhs.uk in which patients themselves access the NHS Pathways CDSS. Pathways’ underlying clinical information makes a risk assessment based on the combination of answers provided. It’s essentially a corpus of medical knowledge with the “one thing per page” design principle applied. CDSS’s can be either for diagnostics or triage. Diagnostics is where the tool is actively trying to suggest possible illnesses whereas triage simply assigns a level of risk to direct a patient to the appropriate clinician or care setting. The former is governed by stricter regulations, but this is a bit of a false distinction in my view as a triage system is still making some guess at what the problem might be, in order to assign a risk score. As well as online, CDSS is used by phone operators e.g. on 111, or at the front door of emergency departments. Very specific CDSS can also exist to support clinicians in highly specialist settings e.g. to help doctors select the right chemo dosage in cancer treatment.

    Online consultation systems: these are relatively new on the scene, and are systems in primary care to enable GP-patient interaction to happen remotely. They comprise a number of features that support this. Online consultation is often conflated with video consultation. While the former does encompass video consultation, the terms are not wholly interchangeable because online consultation also encompasses things like form-based triage (i.e. the patient fills in a questionnaire about their symptoms and this is sent to the practice); 2-way messaging between the practice and patient; and symptom checking using a CDSS. Examples are eConsultAsk my GPEngage Consult.

    Personal healthcare record (PHR): PHR is an umbrella term for a digital healthcare record that is owned and administered by the patient themselves. It’s not clear to me yet how much this term is understood beyond a core group of wonkish types like me who work in digital healthcare delivery and policy. A PHR may combine clinical information from various sources, but crucially they also allow the patient to submit information themselves either through manual data entry or via wearables. NHS Digital maintain a working definition of a PHR on their website. Some examples are Tiny Medical AppsPatient Knows Best or Apple Health.

    Computer Aided Dispatch (CAD): This is the system that supports 999 control centres in the management of telephone calls into the service and the coordination of staff and vehicles in support of the calls. It also supports CDSS modules to help triage calls. Ambulance services will also often have a separate EPR for their patients. As the urgent and emergency care sector evolved as its own sector through the advent of the 111 service, so too did the case management tooling. So now equivalent products are available in 111 to queue and manage calls, undertake referrals, update records and perform triage. And some are used across both 999 and 111. In NHSD we have broadly referred to these as Encounter Management Systems but this is not a widely used term. Examples are ClericAdastra.

    Internet pharmacies: also known as ‘distance selling’ pharmacies in commissioner language. These are pharmacy services that fulfil prescriptions by delivering them to your house as opposed to requiring you to go to the pharmacist. They tend to have web or native apps that enable you to manage prescriptions accordingly. Examples are EchoPharmacy2U.

    Patient portals: as much as it pains me to write this heading, this is nonetheless still a term that is oft used in the NHS. It refers to any application either browser-based progressive web app or native app that enables a patient to interact with an underlying clinical system. Usually this is so the patient can see their records, book and manage appointments, and manage their medication. There are a ton of these for both primary and secondary care.

    Wellbeing: there is a massive market for wellbeing apps which support everything from diet, mental wellbeing, sleep. For a browse of some examples it’s worth a look at the NHS Apps library. I’ve not really given them the full treatment here because I know little about them and they aren’t typically transactional in the same way the other examples are.

    Having set all of this out, a few thoughts on healthcare products.

    • The boundaries around the different types of products are very fuzzy. e.g you will get PHRs that have some features of online consultation tools; or EPRs that do the work of a PAS. This sometimes makes it hard to know what to buy, and exacerbates the challenge of ensuring interoperability between systems. i.e. it’s a bit confused, in a similar manner to the organisation of our health institutions as I have blogged before.
    • Somewhat unlike central government departments (in my experience at least) the NHS and its staff are entirely comfortable with the concept of ‘services’. The clue is in the name I suppose. But there is very little discussion of services in the context of digital delivery, except at the national level with things like PDS and e-RS. You rarely hear the term ‘product’ compared to say ‘system’ or ‘tool’, and the closest you get to service is probably ‘digital care pathway’ which is kind of getting there but can miss the real fundamentals.
    • This proliferation of product types means there are lots of places that patient data can be held, hence the massive focus on interoperability in the NHS, and the importance of point 6 in the Future of Healthcare.

    Hopefully this is helpful to digital healthcare workers new and existing. As above, I welcome any additions or comments.

    The views expressed here are all mine and not those of my employer. Thanks to Kate Gill for her fact checking and examples. This was originally published on Medium on 1 May 2020.